Resources For Youth & Families Organized By Special Topics

Health & Wellness Resources

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  • Books

    • Breathe Easy by Jonathan Weiss (Ages 8-14)

    • The Lion Who Had Asthma by Jonathan London and Nadine Bernard Westcott (Ages 4-8)

    • So you have Asthma Too! by Nancy Sander (Ages 5-10)

    • Taking Asthma to School by Barbara Mitchell (Ages 4-8)

    Resources

  • Books for kids/teens

    • Chemo to the Rescue! A children's book about leukemia by Mary Brent and Caitlin Knutsson (Ages 4-8)

    • Kathy's Hats, A story of hope by Trudy Krisher (Ages 4-8)

    • Taking Cancer to School by Cynthia S. Henry and Kim Gosselin (Ages 5-10)

    • Why, Charlie Brown, Why? by Charles M. Schulz (Ages 4-8)

    • Making Cancer Less Painful Booklet - Free PDF

    • Healing Images for Children: Teaching Relaxation and Guided Imagery to Children Facing Cancer and Other Serious Illnesses by Nancy Klein, MA.

    Books for Parents

    • Shelter from the Storm: Caring for a Child with a Life-Threatening Condition" by Hilden, Tobin, & Lindsey

    • The Deepening Shade: Psychological Aspects of Life-Threatening Illness by Barbara Sourkes.

    Resources

  • Books

    Resources

    Acute Pain Resources (Birth to Teen Years)

  • Changing Faces Resources

    Please note: The Changingfaces website was initially created for individuals with cleft and craniofacial conditions, but the resources may be useful for individuals experiencing a wide variety of issues related to visible appearance changes or differences.

  • Books

    • Cadberry's Letters by Jennifer Racek (Ages 4-8)

    • Mallory's 65 Roses by Diane Shader Smith (Ages 4-8)

    • Taking Cystic Fibrosis to School by Cynthia Henry (Ages 4-8)

  • Books for Children:

    • Even Super Heroes Get Diabetes by Sue Ganz-Schmitt (Ages 4-8)

    • Rufus Comes Home by Kim Gosselin (Ages 4-8)

    • Even Little Kids Get Diabetes by Connie Piner (Ages 8-11)

    • It's Time to Learn About Diabetes by Jean Betschart-Roemer (Ages 8-11)

    • Lara Takes Charge by Sally Huss (Ages 8-11)

    • Taking Diabetes to School by Kim Gosselin (Ages 8-11)

    Books for Parents:

    • A First Book for Understanding Diabetes by H. Peter Chase

    • The Ten Keys to Helping Your Child Grow Up with Diabetes by Tim Wysocki

    • Diabetes Burnout: What to do When You Can't Take it Anymore by William Polonski

    Apps

    • Medikidz- Type 1

    • Jerry The Bear

    • Carb Counting with Lenny

    • Toby's T1D Tale

    • MySugr

    • Meal Memory App

    • Calorie King

    • Diabetic Connect App

    • Sugar Sense

    Free online resources:

    Child-friendly explanation of diabetes:

    What is Diabetes?

    Someone is diagnosed with aiabetes when their pancreas is no longer making insulin. It is no one's fault and nothing that you or your parents did wrong.

    Just like a car, our body needs fuel to run. Our fuel is food- it helps us think, play, and stay healthy. For a car to work it needs fuel but it also needs a key. Our body's key is called insulin. Insulin helps turn the food we eat into the energy we need. Since your body isn't making insulin you have a very important job to stay healthy. Now, you get to be your own pancreas!

    Or

    When we eat the sugar from our food goes into our bloodstream. Then our pancreas releases insulin that helps this sugar go into our cells so we can do all the important things like think, play, and stay healthy. Insulin is like a "key" that opens doors to our cells. Someone is diagnosed with Diabetes when their body (pancreas) is no longer making insulin.

    • Taking Seizure Disorders to School: A Story about Epilepsy by Kim Gosselin (Ages 8-12)

  • Books

    • The Gas We Pass by Shinta Cho (Ages 4-6)

    • It Hurts When I Poop: Children who are scared to use the potty by Howard Bennett (Ages 4-12)

    • The Moose with Loose Poops by Charlotte Cowan (Ages 4-10)

    • The Truth about POOP! by Susan Goodman (Ages 6-up)

    • Where's the Poop by Julie Markers (Ages 4-6)

  • Books

    • Do I have to go to the Hospital? by Pat Thomas (Ages 4-8)

    • Hospital (first time series) by Jess Stockham

    • Franklin Goes to the Hospital by Paulette Bourgeois (Ages 3-8)

    • Harry Goes to the Hospital by Howard Bennett (Ages 3-8)

    • Jack's Amazing Magic Bed by Helen Snyder Bennett (Ages 3-8)

  • For Children

    • Kids Health Galaxy – The Children’s Hospital of Philadelphia

    For Parents

  • Operation Freedom

    Canine Companions

  • Cancer

    • Oliver's Story For "Sibs" of Kids with Cancer by Michael Dodd (Ages 4-8)

    • Stevie's New Blood by Kathryn Ulberg Lilleby (Ages 5-12)

    Diabetes

    • o My Sister Rose Has Diabetes by Monica Driscoll Beatty (Ages 8-11)

    Illness & Hospitalization

    • What About Me?: When Brothers and Sister Get Sick by Allan Peterkin (Ages 4 and up)

    • When Molly Was in the Hospital by Debbie Duncan (Ages 3 and up)

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